To enhance the Self esteem of People with Albinism
The Albinism Society of South Africa was established in 1992 and is the brainchild of the Executive Director, Mrs. Nomasonto Mazibuko. The whole idea of establishing the organization was to enhance the self- esteem of people with albinism, enable and support parents to care properly for children with albinism and create socially acceptable conditions for people with albinism. This is achieved by running a number of projects and programmes as well as running workshops and seminars. The other aim of the society is collecting and disseminating information on albinism to the community.
Background: Operations and Governance
The Albinism Society functions with the help and support of the National Office located in Gauteng in the center of Johannesburg as well as support groups and non-permanent co-ordinators in nine provinces who service the organization purely on a voluntary basis.
There is a board of seven members governing the operations of the organization. The board meets once every quarter and in addition the executive committee made up of the Chairperson, the Treasurer, the Minutes Secretary and Projects Co-ordinator meets regularly for urgent matters.
The Society engages in lobbying and advocating for needs, recognition and social acceptability of people with albinism and their families. It also provides education and awareness by engaging the community through conducting workshops that seek to dispel myths and misconceptions on albinism. Some of the activities of the Society include:
Aims and Objectives
Notable Activities of the Society
The Society is involved in the following activities:
|Mr. Patrick Wadula||Chairperson|
|Mr. Sanele Mtshazo||Vice Chairperson|
|Tendamudzimu Mathagu||Board Member|
|Thabo Letsati||Board Member|
|Patricia Kegomoditswe||Board Member|
|Catherine Nyakato||Board Member|
The Society is an affiliate to the South African National Council for the Blind (SANCB) as well as the South African inherited Disorders Association (SAIDA). Cancer association